So close I can taste it

Aiden Day 11

Hi everyone! I'm doing really well and my mommy and daddy tell me that we're going home tomorrow. I'm not sure what or where home is but they seem excited about it so I'll play along.

They say that I have a big brother and his name is Denver.... I can't wait to meet him.

Today was a really good day for me. I got to leave the unit with my mommy and we walked down to the radiology department to get a chest xray.... I was amazed at all the lights in the ceilings. A strange woman named "transport" went with us but my mommy did all the work. The nurses in the radiology department strapped me down to a big metal table and put my head in a foam box. I didn't like it.... I screamed a lot. They covered my pee pee with lead. My mommy had to wear lead to. The doctor said my xray looked good so I hope they stop clapping on my chest soon.... knowing my mommy though, she'll continue to do it for weeks after we leave the hospital.... she's scared I'll get pneumonia.

Next - I had my final echo. The man warmed up the goop this time so I kept the crying to a minimum. The doctor said my echo looked very good and that my Aortic valve is only leaking very mildly. Hopefully I will get completely better and not have to take that medicine called capoten one day. I'm also off of the oxygen. I just kept taking deep breaths like my mommy told me. It was easy.

I'm kind of fussy today... I just can't get comfortable and I don't want anyone but my mommy and daddy touching me. The nurses poked a hole in my heel for a PKU test. I was really mad and got my heart rate up to 170. Otherwise my vitals are rock solid stable. The doctor told my mommy that he cant wait until I go home becuase he wants mommy to stop watching the monitor. But I watch it too.... in the middle of the night it glows real pretty and I stare at all the waveforms while my mommy plays lullabies.

My daddy came later in the afternoon today. I was so glad. I like it when we're all together. We're all staying in my room tonight. It will be like a sleep over. We're going to watch the Steeler game. This will be my third one. Maybe it will make more sense to me the more I watch it. It must be a big deal because both of my nurses have "steelers' written all over their outfits and my daddy brought me a steeler onsie with footies. My mommy got in trouble for putting me in that brown onsie yesterday... I guess brown is her favorite color... it really didn't have anything to do with the Cleveland Browns. I spit up all over it just in case and she had to change it.

So that's it! I'm signing out. I have to go home with a feeding tube tomorrow which is a bummer. I'm sucking real well but after about 10 minutes I lose interest. There's just so much to look at around the room. I would rather do that.

My mommy is sick now too.... she says she has cabin fever... but none of the doctors are helping her so I guess it's not too serious. She says it will be gone tomorrow.

I'll write more tomorrow when I get "home". Mommy and daddy say I'm gonna love it. We'll see... I bet they are right.

TTYL

Aiden